Confidential inquiry into the premature deaths of people with learning disabilities (CIPOLD)

News item posted: 17 March 2017

The CIPOLD study, led by academics at the University of Bristol and funded by the Department of Health, investigated the extent of premature death in people with learning disabilities and offered guidance on prevention. The findings showed that people with learning disabilities are more likely to have a premature death than those in the general population.

In response to the study, Fiona Ritchie, Turning Point's Managing Director for Learning Disability services said;

"These shocking statistics are sadly not new to people working in the Learning Disability sector but they are statistics which we should not tolerate. The question we need to ask ourselves is how do we change this?

I full heartedly support the report's focus on proactive planning for the future rather than responding in a crisis. Our focus should be on dignity and respect to the very end. The needs and wishes of clients are paramount and all organisations should have a strong emphasis on advance statements which detail these.

The focus on revising and clarifying the guidelines for orders not to attempt cardiopulmonary resuscitation on an individual is hugely important. At Turning Point we constantly review and develop end of life plans for clients. Anything less is unacceptable. We all need to work together to ensure that these shocking, but not unexpected statistics, are dealt with head on."